Users’ experiences with home mechanical ventilation: a CERQual review of qualitative studies

Ørtenblad,L., Carstensen, k., Væggemose, U., Løvschall, C., Sprehn, M., Küchen, S., Nørregaard, O., Jensen, L.G.

Users of home mechanical ventilation encounter major psychological and physiological challenges. To ensure well-functioninghome mechanical ventilation, the users’ experiences of care and treatment are important knowledge to supplement clinical perspectives. This systematic review aimed to summarise current qualitative evidence regarding experiences of home mechanical ventilation users.

Following PRISMA guidelines, nine databases were systematically searched. Seven studies met the inclusion criteria after title/abstract screening and full text assessment. These were appraised using the RATS checklist. Thematic analysis guided data extraction and identification of findings. The CERQual tool was applied to assess the confidence of the findings.

The results of the review showed high confidence in four findings: increase in quality of life; feeling forced to accept home mechanical ventilation; collaboration between home-care assistants and users of home mechanical ventilation is challenging; information about the technology from a user perspective. The review showed moderate confidence in two findings: living at home is pivotal for a normalised everyday life; home mechanical ventilation causes a life with continued worries and uncertainty.
According to the users, treatment by home mechanical ventilation results in increased well-being and facilitated a community-based and home-based lifestyle compared to institutional-based treatment. However, the users also expressed difficulties in coming to terms with the necessary extensive surveillance, which gave rise to a sense of undermined autonomy and self-determinism as well as continued worries and uncertainty. The users call this situation “dependent independency.” To accommodate this paradox, the review calls for an increased focus on patient-centred treatment and care.

Link til projektet bag publikationen

Udgivelsesform Videnskabelige artikler
År 2019
Udgiver Respiratory Care
ISBN/ISSN DOI: 10.4187/respcare.06855
Længde 12 sider