Stroke patients' and informal carers' experiences with life after stroke: an overview of qualitative systematic reviews

Stina Lou; Kathrine Carstensen; Carina Rumpelthiin Jørgensen; Camilla Palmhøj Nielsen

ABSTRACT: PURPOSE To provide a systematic overview of current qualitative systematic reviews and metasyntheses of patients’ and informal carers’ experiences with rehabilitation and life after stroke following discharge. METHOD A systematic literature search was performed based on PRISMA guidelines. Nine databases were systematically searched by a university librarian. The search yielded 1093 unique entries and screening by title/abstract identified 60 reviews for potential inclusion. After full-text assessment by two independent observers, 11 reviews satisfied the inclusion criteria. Following quality appraisal, four studies were excluded. RESULTS Seven qualitative reviews (containing 108 primary studies) were included: five reviews of patients’ experiences and two reviews of carers’ experiences. Stroke causes profound disruption of life as known, and both patients and carers must engage in a process of adapting and rebuilding a post-stroke life and identity. This process of rehabilitation is described as temperamental and unstable rather than progressive. From the reviews, five key experiences in this process are identified: autonomy, uncertainty, engagement, hope and social relations. CONCLUSIONS The need for broad, qualitative syntheses of stroke patients’ experiences is currently fulfilled. Future qualitative reviews could focus more on implications for practice, e.g., by grading the quality of the metafindings. "Disability and Rehabilitation", DOI: 10.3109/09638288.2016.1140836.

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Udgivelsesform Videnskabelige artikler
År 2016
Udgiver Disability and Rehabilitation